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Getting Robin new wings: Florida family holds Internet benefit for daughter's much-needed wheelchair

Online benefit nears its end; donations still needed to reach goal

September 20, 2012
Melissa Schneider - Editor (mschneider@breezenewspapers.com) , Fort Myers Beach Bulletin, Fort Myers Beach Observer

Only a short period of time remains before the online benefit ends for a young girl who needs a new wheelchair to survive, and the goal has not yet been met.

"Any donation is welcomed -- whether it's $5 or $500. We are so very close to reaching our goal for Robin's new and very much needed wheelchair."

Please visit www.IndieGogo.com/GoTeamRobin.

Article Photos

Robin is your typical 20-year-old girl: She loves the Twilight sagas, enjoys makeup and fashion, and has every book in the Harry Potter collection. But, Robin also suffers from something most young girls don't even know about. Robin has cerebral palsy, a debilitating disease that requires her to enjoy her happy post-teen life from a wheelchair. Her family has banded together to host an Internet-wide benefit to raise enough funds for her costly-but-necessary wheelchair, and offers incentives for donations big and small. Visit IndieGogo.com/GoTeamRobin. Photo courtesy JESSE MARIUS.

At the age of 20, Robin is your typical post-teen girl: She loves the Twilight sagas, enjoys makeup and fashion, and has every book in the Harry Potter collection. But, Robin also suffers from something most young girls don't even know about. Robin has cerebral palsy, a debilitating disease that requires her to enjoy her happy post-teen life from a wheelchair.

"Robin has been in a wheelchair all her life, and it's something that we've all become accustomed to, but her wheelchair is getting so old that almost something on it breaks on a daily basis now," said her mother, Jesse Marius, an Orlando resident. "She's been a real trooper about it, but I can't stand to see her struggle any longer."

Along with Robin's extra medical necessities come big bills -- bills that are already hard enough to cover, let alone the expense of a new wheelchair that can accommodate her many special needs.

"The type of wheelchair Robin needs is not one that you can just pick up for a couple thousand dollars," Jesse said. "They are very expensive, and we just can't afford it."

In fact, the wheelchair that Robin requires, one that can help her through her daily routine while suffering from this horrible disease, costs about $20,000. With such a severe expense -- one that is necessary to carry on her normal life -- and no means to obtain it, Jesse went on a mission to help Robin get new wings.

"I started the Go Team Robin fund last month, as a call-out to anyone that can help my daughter get the wheelchair she needs so badly. Through online donations and words of encouragement, we're determined to raise the amount necessary for her to once again be comfortable and live her life without pain," Jesse said.

Several online sites have been set up to help Robin obtain the functional necessity in her life, through Facebook (Facebook.com/GoTeamRobin), Twitter (Twitter.com/GoTeamRobin) and other user-enhanced sources. But, www.IndieGogo.com/GoTeamRobin is the main source utilized by Jesse and her fund-raising team to raise enough sources to make this dream a reality.

"We're not only asking for donations, but actually, thanks to the immense amount of support from wonderful friends and family, we have been able to offer fantastic incentives to those who donate," Jesse said. "We have wonderful items to offer our sponsors, from hand-made artwork and gift baskets to custom-designed crafts and fashions. So, you're not only helping a great girl get what she needs, but also getting a great gift in the process."

It's been one month since Jesse kicked off the Go Team Robin campaign, and, so far, nearly $9,000 has been raised for the new wheelchair.

"We've really been getting some great donations, and so thankful for every one of them. We're almost halfway there. But, if we can't reach that goal, we can't get her that chair, so it's imperative people visit IndieGogo.com/GoTeamRobin and register," Jesse said. "Visit the site, make a donation and get some fantastic prizes. It's a win/win situation."

Jesse is also eager to point out that a special raffle is held each and every week for those who make a donation of $20 or greater to the cause. Also, on a fairly regular basis, additional instant incentives are offered to the first person to make a donation of $50, and so on.

"We really like to keep it fun for those making gracious donations to Robin's cause," Jesse said. "Everyone loves to win something extra."

Currently residing in Oklahoma, Robin is able to get visits from her mom and family about once every month. During that time, Jesse likes to bring her daughter special care packages that any young girl would love, full of hair accessories, makeup and body sprays to everyday necessities like leave-in conditioner, body wash, ankle socks, toothpaste, floss and deodorant.

"We just do whatever we can to make her feel as comfortable as possible," Jesse said. "By raising enough to be able to get her the wheelchair she so desperately needs, Robin can truly get the wings she deserves."

For more information on how you can help the Go Team Robin fund, visit IndieGogo.com/GoTeamRobin or email demmefatale@facebook.com.

 
 

 

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